Between Social Involvement and Working for a Living: Activism and Work in the Narratives of Female Activists with Disabilities in Poland

Kamila Albin

doi:10.18778/1733-8069.22.1.02

Autor

Kamila Albin University of Warsaw, Poland https://orcid.org/0000-0002-2846-8751

DOI:

https://doi.org/10.18778/1733-8069.22.1.02

Słowa kluczowe:

aktywizm, tożsamość, kobiety z niepełnosprawnościami, praca, wywiad narracyjny

Abstrakt

Artykuł podejmuje zagadnienia związane z aktywizmem i pracą zawodową. Opierając się na wywiadach narracyjnych przeprowadzonych z kobietami aktywistkami z niepełnosprawnością, autorka analizuje, w jaki sposób kobiety zarządzają podejmowanymi rolami aktywistek i pracownic (np. decydując się na pracę z własną tożsamością w działaniach samorzeczniczych), a także w jaki sposób równoważą działania aktywistyczne z bezpieczeństwem ekonomicznym. Wyniki badań wskazują na cztery typy idealne aktywistek: aktywistkę prekariuszkę, aktywistkę na etacie, aktywistkę menedżerkę i aktywistkę w czasie wolnym. W każdym z nich stosowane są określone strategie łączenia lub rozdzielania aktywizmu i pracy zarobkowej. Autorka pokazuje, że aktywizm nie jest wyłącznie formą społecznego zaangażowania – może on służyć także jako środek samorealizacji, rozwoju zawodowego i budowania tożsamości. Artykuł wykracza poza perspektywę rehabilitacji i aktywizacji zawodowej osób niepełnosprawnych, pokazując sprawstwo kobiet w kształtowaniu swojej kariery, zarówno aktywistycznej, jak i zawodowej.

Pobrania

Brak dostępnych danych do wyświetlenia.

Biogram autora

Kamila Albin - University of Warsaw, Poland

Kamila Albin
Ph.D. candidate in the Institute of Applied Social Sciences, University of Warsaw. A sociologist by training, her research interests revolve around disability studies. Her dissertation is devoted to self-advocacy and activism of women with disabilities in a biographical perspective.

Bibliografia

Act of 4 April 2019 on the digital accessibility of websites and mobile applications of public entities (2019), Journal of Laws of the Republic of Poland, item 848, https://isap.sejm.gov.pl/isap.nsf/download.xsp/WDU20190000848/T/D20190848L.pdf (accessed: 21.02.2025).
Google Scholar

Act of 19 July 2019 on ensuring accessibility for people with special needs (2019), Journal of Laws of the Republic of Poland, item 1696, https://isap.sejm.gov.pl/isap.nsf/download.xsp/WDU20190001696/T/D20191696L.pdf (accessed 21.02.2025).
Google Scholar

Adorjan Michael, Kelly Benjamin (2017), Interpretive Sociology, [in:] The Blackwell Encyclopedia of Sociology, John Wiley & Sons, Ltd., https://doi.org/10.1002/9781405165518.wbeos0698
Google Scholar

Babbie Earl (2006), The Practice of Social Research, Belmont: Wadsworth Publishing.
Google Scholar

Baeken Andries, Forrier Anneleen, De Cuyper Nele (2025), Is Work Still a Right if it has Become a Norm? Disability Inclusion in Labor Market Policy Discourse, “Journal of Business Ethics”, vol. 201, pp. 839–857, https://doi.org/10.1007/s10551-025-05962-6
Google Scholar

Barnes Colin (2000), A Legacy of Oppression: A History of Disability in Western Culture, [in:] Len Barton, Michael Oliver (eds.), Disability studies: Past, present and future, Leeds: Disability Press, pp. 3–24.
Google Scholar

Barnes Colin (2012), Understanding the social model of disability: past, present and future, [in:] Nick Watson, Alan Roulstone, Carol Thomas (eds.), Routledge Handbook of Disability Studies, London–New York: Routledge, pp. 12–29.
Google Scholar

Basas Carrie Griffin (2015), Advocacy Fatigue: Self-Care, Protest, And Educational Equity, “Windsor Yearbook of Access to Justice”, vol. 32(2), pp. 37–64, https://doi.org/10.22329/wyaj.v32i2.4681
Google Scholar

Blenner Sarah R., Lang Cathy M., Prelip Michael L. (2017), Shifting the Culture Around Public Health Advocacy: Training Future Public Health Professionals to be Effective Agents of Change, “Health Promotion Practice”, vol. 18(6), pp. 785–788, https://doi.org/10.1177/1524839917726764
Google Scholar

Braun Virginia, Clarke Victoria (2006), Using thematic analysis in psychology, “Qualitative Research in Psychology”, vol. 3(2), pp. 77–101, https://doi.org/10.1191/1478088706qp063oa
Google Scholar

Charycka Beata, Gumkowska Marta, Arczewska Magdalena (2020), ZaTRUDnienie. Problemy personelu organizacji pozarządowych z perspektywy pracowniczej, Warszawa: Stowarzyszenie Klon/Jawor.
Google Scholar

Chataika Tsitsi, Sibanda Samantha, Mateta Abraham, Bahadur Sunar Krishna (2020), A virtual roundtable: Re/defining disability activism with emerging global South disability activists, [in:] The Routledge Handbook of Disability Activism, Abingdon– New York: Routledge, pp. 21–37.
Google Scholar

Chirwa Esnat, Jewkes Rachel, Van Der Heijden Ingrid, Dunkle Kristin (2020), Intimate partner violence among women with and without disabilities: A pooled analysis of baseline data from seven violence-prevention programmes, “BMJ Global Health”, vol. 5(11), e002156, https://doi.org/10.1136/bmjgh-2019-002156
Google Scholar

Costa Ana L., Vaz Henrique, Menezes Isabel (2021), The Activist Craft: Learning Processes and Outcomes of Professional Activism, “Adult Education Quarterly”, vol. 71(3), pp. 211–231, https://doi.org/10.1177/0741713620988255
Google Scholar

Edú-Valsania Sergio, Laguía Ana, Moriano Juan A. (2022), Burnout: A Review of Theory and Measurement, “International Journal of Environmental Research and Public Health”, vol. 19(3), 1780, https://doi.org/10.3390/ijerph19031780
Google Scholar

European Disability Forum (2021), Violence against women and girls whit disabilities in the European Union. European Disability Forum – Position Paper May 2021. Recommendations on EU policies to combat violence against women and girls with disabilities, https://www.edf-feph.org/content/uploads/2021/05/final-EDF-position-paper-on-Violence-against-women-and-girls-with-disabilities-in-the-European-Union.pdf (accessed: 21.02.2025).
Google Scholar

Furgał Ewa (2022), Dziewczyna w spektrum, Warszawa: Biała Plama.
Google Scholar

Galer Dustin (2012), Disabled Capitalists: Exploring the Intersections of Disability and Identity Formation in the World of Work, “Disability Studies Quarterly”, vol. 32(3), https://doi.org/10.18061/dsq.v32i3.3277
Google Scholar

Galer Dustin (2018), Working towards equity: Disability rights activism and employment in late twentieth-century Canada, Toronto– Buffalo–London: University of Toronto Press.
Google Scholar

Gill Carol J. (1997), Four types of integration in disability identity development, “Journal of Vocational Rehabilitation”, vol. 9(1), pp. 39–46, https://doi.org/10.3233/JVR-1997-9106
Google Scholar

Golczyńska-Grondas Agnieszka (2014), ‘Wychowało nas państwo’: Rzecz o tożsamości dorosłych wychowanków placówek opiekuńczo-wychowawczych, Kraków: Zakład Wydawniczy Nomos.
Google Scholar

Greenslade Leia, McAuliffe Donna, Chenoweth Lesley (2015), Social Workers’ Experiences of Covert Workplace Activism, “Australian Social Work”, vol. 68(4), pp. 422–437, https://doi.org/10.1080/0312407X.2014.940360
Google Scholar

Hammersley Martyn, Atkinson Paul (2019), Ethnography: Principles in Practice, Abingdon: Routledge.
Google Scholar

Hardt Michael, Negri Antonio (2000), Empire, Boston: Harvard University Press.
Google Scholar

Hochschild Arlie R. (2012), The managed heart: Commercialization of human feeling, Berkeley–London: University of California Press.
Google Scholar

Jackson Elisabeth, Liu Ekawati, Salim Ishak, Saidah Cucu, Yulianto Joni, Ramadhan Syarif Syarif, Yuningsih Yuyun, Robandi, Sahetapy Panji Surya Putra, Sendjaya Sen (2025), From disability identity to disability activism: leadership journeys of persons with disabilities in Indonesia, “Disability & Society”, vol. 40(2), pp. 3395–3418, https://doi.org/10.1080/09687599.2025.2479558
Google Scholar

Jędrzejewska Paulina, Grabowski Piotr, Możański Maciek (2022), Aktywizm i wypalenie, czyli awers i rewers, “Magazyn Lewicy Katolickiej”, https://magazynkontakt.pl/aktywizm-i-wypalenie-czyli-awers-i-rewers (accessed: 21.02.2025).
Google Scholar

Klandermans Bert (2002), The demand and supply of participation: Social psychological correlates of participation, “Revista Psicologia Política”, vol. 2(3), pp. 83–114.
Google Scholar

Kvale Steinnar (2012), Doing interviews, Los Angeles: Sage Publications.
Google Scholar

Kvale Steinar, Brinkmann Svend (2009), Interviews: Learning the Craft of Qualitative Research Interviewing, Los Angeles: Sage Publications.
Google Scholar

Labour Code (2023), Journal of Laws of the Republic of Poland, item 1465.
Google Scholar

Liamputtong Pranee (2007), Researching the vulnerable: A guide to sensitive research methods, London–New Delhi: Sage.
Google Scholar

Martens Kerstin (2006), Professionalised representation of human rights NGOs to the United Nations, “The International Journal of Human Rights”, vol. 10(1), pp. 19–30, https://doi.org/10.1080/13642980500386081
Google Scholar

Martin Brian (2007), Activism, social and political, [in:] Gary L. Anderson, Kathryn G. Herr (eds.), Encyclopedia of Activism and Social Justice, Thousand Oaks: Sage, pp. 19–27.
Google Scholar

Meyer Sarah R., Stöckl Heidi, Vorfeld Cecilia, Kamenov Kaloyan, García-Moreno Claudia (2022), A scoping review of measurement of violence against women and disability “PLOS ONE”, vol. 17(1), e0263020, https://doi.org/10.1371/journal.pone.0263020
Google Scholar

Męcińska Lula (2018), Osobista narracja jako sposób wyrażenia intersekcjonalnego aktywizmu ucieleśnionego w internecie: przypadek Eve C., “Annales Universitatis Paedagogicae Cracoviensis. Studia de Cultura”, vol. 10(1), pp. 38–58, https://doi.org/10.24917/20837275.10.1.4
Google Scholar

Mrozowicki Adam, Karolak Mateusz, Czarzasty Jan, Gardawski Juliusz, Drabina-Różewicz Aleksandra, Krasowska Agata, Andrejczuk Magdalena (2020), Prekaryzacja pracy a świadomość społeczna i strategie życiowe ludzi młodych: ramy teoretyczne, [in:] Adam Mrozowicki, Jan Czarzasty (eds.), Oswajanie niepewności. Studia społeczno-ekonomiczne nad młodymi pracownikami sprekaryzowanymi, Warszawa: Wydawnictwo Naukowe Scholar, pp. 17–48.
Google Scholar

Nario-Redmond Michelle R., Noel Jeffrey G., Fern Emily (2013), Redefining Disability, Re-imagining the Self: Disability Identification Predicts Self-esteem and Strategic Responses to Stigma, “Self and Identity”, vol. 12(5), pp. 468–488, https://doi.org/10.1080/15298868.2012.681118
Google Scholar

Nepveux Denise M. (2015), Activism, [in:] Rachel Adams, Benjamin Reiss, David Serlin (eds.), Keywords for Disability Studies, London–New York: New York University Press, pp. 21–25.
Google Scholar

NIK (2022), Informacja o wynikach kontroli. Aktywizacja zawodowa osób niepełnosprawnych przez powiatowe urzędy pracy, https://www.nik.gov.pl/plik/id,25417,vp,28178.pdf (accessed: 21.02.2025).
Google Scholar

Petri Gabor, Beadle-Brown Julie, Bradshaw Jill (2021), ‘Even a Self-Advocate Needs to Buy Milk’ – Economic Barriers to Self- Advocacy in the Autism and Intellectual Disability Movement, “Scandinavian Journal of Disability Research”, vol. 23(1), pp. 180–191, https://doi.org/10.16993/sjdr.738
Google Scholar

Putnam Michelle (2005), Conceptualizing Disability: Developing a Framework for Political Disability Identity, “Journal of Disability Policy Studies”, vol. 16(3), pp. 188–198, https://doi.org/10.1177/10442073050160030601
Google Scholar

Rose Sarah F. (2015), Work, [in:] Rachel Adams, Benjamin Reiss, David Serlin (eds.), Keywords for Disability Studies, London– New York: New York University Press, pp. 187–190.
Google Scholar

Roth Silke (2016), Professionalisation and precariousness: perspectives on the sustainability of activism in everyday life, “Interface: A Journal for and about Social Movements”, vol. 8(2), pp. 29–58, https://eprints.soton.ac.uk/404093/ (accessed: 21.02.2025).
Google Scholar

Russell Marta, Malhotra Ravi (2002), Capitalism and Disability, “International Socialist Register”, vol. 38, pp. 211–228.
Google Scholar

Schur Lisa (2003), Contending with the “Double Handicap”: Political Activism Among Women with Disabilities, “Women & Politics”, vol. 25(1–2), pp. 31–62, https://doi.org/10.1300/J014v25n01_02
Google Scholar

Self-Advocacy@Work (2023), What is Self-Advocacy?, https://selfadvocacy.au/self-advocacy/self-advocacy-101/what-self-advocacy (accessed: 21.02.2025).
Google Scholar

Shiv Ganesh, McAllum Kirstie (2012), Volunteering and Professionalization: Trends in Tension?, “Management Communication Quarterly”, vol. 26(1), pp. 152–158, https://doi.org/10.1177/0893318911423762
Google Scholar

Staggenborg Suzanne (1988), The Consequences of Professionalisation and Formalisation in the Pro-Choice Movement, “American Sociological Review”, vol. 53(4), pp. 585–605, https://doi.org/10.2307/2095851
Google Scholar

Standing Guy (2011), The precariat: The new dangerous class, Bloomsburry: Bloomsbury Academic.
Google Scholar

Strauss Anselm L. (2017), Mirrors and masks: The search for identity, Abingdon: Routledge.
Google Scholar

Taylor Rebecca (2004), Extending Conceptual Boundaries: Work, Voluntary Work and Employment, “Work, Employment and Society”, vol. 18(1), pp. 29–49, https://doi.org/10.1177/0950017004040761
Google Scholar

Trawińska Marta (2019), Wyczerpane aktywistki, wypaleni działacze. Aktywizm jest pracą!, https://publicystyka.ngo.pl/wyczerpane-aktywistki-wypaleni-dzialacze-aktywizm-jest-praca (accessed: 21.02.2025).
Google Scholar

Turner David M., Bohata Kirsti, Thompson Steven (2017), Introduction, “Disability Studies Quarterly”, vol. 37(4), https://doi.org/10.18061/dsq.v37i4.6101
Google Scholar

Van Stekelenburg Jacquelien, Klandermans Bert (2017), Individuals in Movements: A Social Psychology of Contention, [in:] Handbooks of Sociology and Social Research, Cham: Springer International Publishing, pp. 103–139.
Google Scholar

Weeks Kathi (2007), Life Within and Against Work: Affective Labor, Feminist Critique, and Post-Fordist Politics, “Ephemera: Theory and Politics in Organization”, vol. 7(1), pp. 233–249.
Google Scholar

Weeks Kathi (2011), The problem with Work: Feminism, Marxism, Antiwork Politics, and Postwork Imaginaries, Durham: Duke University Press, https://doi.org/10.1215/9780822394723
Google Scholar